Friday, October 7, 2005 Issue 6   VOLUME 1 ISSUE 6  
CONTENTS
HCMA works with “Strong Medicine” -Tune in on October 16, 2005
Heart Rythm Society and the FDA hold Policy Conference on Pacemaker and ICD Performance
Young ICD Conference
HCMA heads to Dallas for AHA!
HCM and the truth about genetic testing
A Word from our President
HCMA works with “Strong Medicine” -Tune in on October 16, 2005
HCMA works with “Strong Medicine” on a story near to our hearts!
Front page of script.

The HCMA helps craft a script that is true to life and will help spread the word about HCM!!

[FULL STORY]
 
Heart Rythm Society and the FDA hold Policy Conference on Pacemaker and ICD Performance
The HCMA presented the patients point of view
Lisa Salberg

On September 16, 2005 in Washington DC the HCMA participated in this important meeting. This article is a review of the meeting from my point of view.

[FULL STORY]
 
Young ICD Conference
October 21-22, 2005 Ypsilanti , Michigan
http://www.4hcm.org/WCMS/download.php?id...
HCMA

Come join us to share some laughs, some information and some great stories about living with ICD's under the age of 40!

[FULL STORY]
 
HCMA heads to Dallas for AHA!
For Professionals attending AHA

Visit us at American Heart Associations Scientific Sessions on the exhibit floor booth #4012.

[FULL STORY]
 
HCM and the truth about genetic testing
Do not believe everything you read on the sports page!

In the past few weeks HCM has been the lead news in Chicago and New York sports casts. The attention comes from one player that may or may not have HCM. It is highly unfortunate that some people have given an unrealistic view of the role of genetic testing in HCM, we hope to help the public understand the truth behind genetic testing in HCM.

[FULL STORY]
 
SUBSCRIBE

Enter your email address in the box below to receive an email each time we post a new issue of our newsletter:


Add Remove
Send as HTML
 

HCMA's Implantable device questionnaire

Do you have an implantable defibrillator or pacemaker?

Yes

No

Have you ever had a recall or alert issues on your device?

Yes

No

I am not sure

Have you ever had a recall or alert on your leads?

Yes

No

I am not sure

If you answered yes to having been part of a recall or alert do you feel you recieved this information in a timely manner?

Yes

No

I am not sure

Do you think the FDA is doing the best job they can in monitoring the device industry?

Yes

No

I am not sure

I do not know what oversight they have over the industry

Do you think the device manufacturers are doing their best to inform patients in the event of a recall?

Yes

No

I am not sure

If a device is recalled who should be responsible for the cost of replacement?

The manufacturer

The patients insurance company

The patient

It should be shared between the manufacturer and the insurance comapny based on the age of the device

Should a device manufacturer be permitted to sell exsisting devices once they have discovered a flaw and redesigned and produced a new version?

Yes

No

I am not sure

Please let us know who you are. (choose one)

I am the patient

My loved one is the patient

I am a health care provider

I work in the device industry

 See Results
ARCHIVE
Issue 5
July 21, 2005
Vol. 1 Issue 5
Issue 4
April 29, 2005
Vol. 1 Issue 4
Issue 3
January 27, 2005
Vol. 1 Issue 3
Issue 2
February 21, 2004
Vol. 1 Issue 2
Issue 1
October 9, 2003
Vol. 1 Issue 1
Published by HCMA Staff
Copyright © 2005 Hypertrophic Cardiomyopathy Assocation. All rights reserved.
Information contain herein is for informational purpose only. You should seek advise from your health care provider for questions about your personal health care.
TELL A FRIEND
Created with eNewsBuilder